Kameron Kadinger, 2, lays on the family’s golden lab, Dextar or “dexy”, after getting his diaper changed, Monday, Feb. 25, 2019 at the family’s home in Selma, Ind. Dextar will soon be sent to Conifer Canine, a training facility, for two months. Afterwards he will function as a therapy dog for Kam.

Amanda Jordan, Kam's mother, tickles him after changing his diaper before bed Thursday, March 21, 2019 at their home in Selma, Ind. Amanda and Kam's father, Kieth Kadinger are both heterozygous carriers of Accute Intermitant Porphia (AIP) disease. Kam is one of six reported cases in the world to have the homozygous version of this disease.

Kam lays on the couch Thursday, March 21, 2019, after receiving his nightly fluids before bed at home in Selma, Ind. Kam has a G-tube inserted into his stomach so that he can receive fluids four to five times a day.

Amanda plays peak-a-boo with Kam as he sits on the floor, Thursday, March 7, 2019, at their home in Selma, Ind. Amanda propped Kam up against the couch as the disease doesn't allow his muscles to develop normally to sit up on his own.

Amanda kisses Kam as he throws a fit after she puts him in his car seat after therapy in Carmel Ind. Monday, March 3, 2019. Throughout the week, Kam undergoes 5 different types of therapy sessions, to help him gain cognitive, motor, verbal and physical skills.

Amanda feeds Kam while Keith, Kameron’s father, eats dinner at Moe’s Southwest Grill in Muncie, Ind., Thursday, March 21, 2019.

Kam throws a fit during therapy at Meridian Health Services in Muncie, Ind. Friday, Feb. 22, 2019. Kam visits Meridian twice a week to work on physical and cognitive skills.

While waiting in the hallway for a therapist to come get them, Kam looks at Amanda as she tickles him, Friday, Feb. 22, 2019 at Meridian Health Services in Muncie, Ind.

Amanda puts her hand up for a high five, but Kam misses, Friday Feb. 22, 2019 during therapy at Meridian Health Services in Muncie, Ind. Kam struggles to put balls into cups at therapy and cheerios in his mouth at home.

Kam and Amanda facetime Keith while waiting in the Emergency Room for a room upstairs for Kam at Riley Hospital for Children in Indianapolis, Saturday, April 6, 2019. Earlier that day, Amanda noticed Kam was running a high temperature of 102. With Kam having a liver transplant in December of 2017, the doctors and nurses are kept Kam at Riley to do further labs the next day to ensure that the transplant is not being rejected, that his bloodstream was not infected and to assess for any acute illnesses including viral and bacterial concerns.

Amanda watches Kam as he lays in a crib at Riley Hospital for Children, Saturday, April 6, 2019.

Kameron holds onto the tubes containing Panhemitan during the infusion, Tuesday, March 4, 2019 at Riley Children’s Hospital in Indianapolis. Panhemitan is a trial drug to see if Kam will gain any cognitive or physical abilities. He will receive the infusion once a week for twelve weeks.

Amanda carries Kam into their house in Selma, Ind. Thursday, March 21, 2019, after speaking on a panel about Rare Diseases hosted by Ball State University.

A tear leaks from Kam’s eye as Amanda reads a book to put him to sleep, Thursday, March 21, 2019 at their home in Selma, Ind. For Amanda, it can take up to an hour to get Kam fall asleep every night in her and Kieth’s bed.

A radiation technician came in at 2:00 AM Sunday, April 7, 2019 to do a chest x-ray on Kameron at Riley Hospital for Children in Indianapolis. The results of the scan showed no new developed areas of concern. The x-ray was looking for any acute illnesses in his lungs.